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We just got a dementia diagnosis

What to do in the first month, and what can wait longer than you think.

Quick answer

What to do in the first month, and what can wait longer than you think.

HomeBy SituationWe just got a dementia diagnosis

The first month after a diagnosis is mostly about slowing down. Very little has to be decided immediately.

Short answer

What to do in the first month, and what can wait longer than you think.

What to do, in order

  1. Slow down. Very little has to be decided this month.
  2. Get the specific diagnosis. Alzheimer's, vascular dementia, Lewy body and frontotemporal dementia progress differently and respond differently to medication.
  3. Do the legal work now, while capacity is clear. Power of attorney, medical power of attorney, directives.
  4. Call the Area Agency on Aging serving your county. Nassau County Office for the Aging (516-227-8900) or Suffolk County Office for the Aging (631-853-8200) -- both are also NY Connects access points.
  5. Understand what memory care will require later. New York requires SNALR certification, an add-on to an ALR license, specifically for dementia care -- not a separate license category.

Questions families ask

How do I check if a Long Island assisted living facility has a clean inspection record?

New York State publishes licensing status and inspection history for every Adult Care Facility, including Assisted Living Residences, on the NYS Health Profiles website (profiles.health.ny.gov/acf), searchable by county, name, or facility type. Each facility's profile page includes an Inspections tab showing survey results. NYSDOH also publishes a statewide Consumer Information Guide: Assisted Living Residence that explains how to read these records.

Is memory care a licensed category in New York, or just a marketing term?

New York does not have a separate memory care license. Dementia and cognitive-impairment care is addressed through the Special Needs Assisted Living Residence (SNALR) certification, an additional certification layered onto an existing Assisted Living Residence license under 10 NYCRR Part 1001. Families should verify a facility's actual SNALR certification on NYS Health Profiles rather than relying on a memory care sign or brochure.

What state regulations govern nursing homes on Long Island?

Nursing homes in New York are licensed and regulated by NYSDOH under 10 NYCRR Part 415, Nursing Homes - Minimum Standards, a completely separate rule set from the Adult Care Facility regulations that govern assisted living. Families can search and compare Nassau and Suffolk nursing homes through the NYS Health Profiles Nursing Home Profiles tool. Note that as of mid-2025, CMS's migration to a new federal inspection database (iQIES) temporarily affected how current some posted inspection data is, so it's worth confirming a record's date.

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